Things have been relatively quiet on the home front these past few months.
So what has been going on? End of junior year is fast approaching. The boy has been so busy with exams, concerts, concerts and exams some days it seems like we never even see each other. The house is a wreck, the dog slightly lonely. But, he wouldn't change it for the world. And I am just so thankful that he gets to be this busy.
We won't have any major health updates until the end of June. The liver dude has ordered more bloodwork at that point. He is so sure that the boy has this thing beat, he didn't feel like he needed to keep up the monthly sticks by the vampires. Right now it is suppose to be resting time for his liver to heal. But, see above about those concerts and exams.
He is feeling fine in the liver department, although he is sick with a cold or something like that. I'm waffling on the edge of watchful eyes and taking him to the doctor. There is no fever, and that is the turning point. Fever = ER. With a compromised immune system anything can be a problem so we are prepared with all the fun things you have to do to stay healthy. You know that stuff your momma taught you when you were younger. The liver dude even wanted him to carry Lysol wipes around in school for the desks, that was where the boy said no. He didn't want to be THAT kid. He will wash his hands, use hand sanitizer, and stay away from sickies, but wiping down each desk in school is just too much. I don't blame him.
To keep his immune system on a leash he takes 150 mg of Imuran (azathioprine) a day. Imuran basically suppresses your immune system by keeping it from producing the stuff that a "regular" person needs to fight off disease. So a cold, flu, etc is a big deal. He can be sick for longer than you and I because of these minor things. He can end up hospitalized. We can't self medicate with over the counter drugs.... look at the labels. Many of them mention liver issues as a reason not to take them. So when the boy gets a cold, it is troublesome. It freaks me the heck out, I'm not gonna lie. He coughed this weekend....and I drove him (and me) nuts. I can't help it. Last time he had that rattling cough.... we went to the PICU. Call it PTSD, over protective, being a mom.
From the great Pappa Wikipedia....
Azathioprine is used alone or in combination with other immunosuppressive therapy to prevent rejection following organ transplantation, and to treat an array of autoimmune diseases...
I won't list the adverse effects, reading them makes my blood pressure go up. But you can read for yourself here. http://en.wikipedia.org/wiki/Azathioprine
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