A common cold that the boy gave me. The boy had it for a few days, sneezing, sniffling but he pushed forward. Weakened immune system and all. A common cold in me...I"m a mess! I must be getting old.
I hope you will think of those around you that may be living with a rare disease. I'm sure they are there. They are used to hearing, but you don't look sick.
Not too long ago I apologized to the boy. He was confused. I was honest. You see he is a teenager. And he is a boy. So for close to a year he has been driving me a little insane. He has been a “lazy teenager” which isn’t something I am used to at all. He has been depressive. Not just him normal introverted self, but extra MEH. In my learning I have found that everything he was, everything that I lectured him on, was all leading to this diagnosis.
And for that I was truly sorry. I lost a few Mom points when I figured that one out. I felt horrible. And so, I apologized. Just as he had said he was sorry while we were in the PICU. Just as he was worried about friends being scared to see him. I was sorry I didn’t maintain myself better. I was worried that maybe I could have kept him out of the hospital… if only. If only….
The liver dude said it best, what happened happened. No one did anything wrong. You just had NO IDEA what you were up against. No one would think a perfectly healthy teenager would have an underlying illness causes these “symptoms”. No one had a common thread to understand there was a dark sinister monster hiding under the bed. Because, he doesn't look sick.
But now we know. And knowing is half of the battle.
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